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Histiocytic Disorders are a group of rare disorders in which too many immature histiocytes (a type of immune cell) build up in certain tissues and organs, including the skin, bones, spleen, liver, lungs and lymph nodes. They can damage tissue or form an abnormal mass (called a lesion or tumor). Some histiocytic disorders are considered cancer, while others are not.
ECD Global Alliance
Population Served:
Patients, family members, and caregivers affected by Erdheim-Chester Disease, health professionals, worldwide
Histiocytosis Association
Population Served:
Patients and families dealing with the effects of histiocytic disorders, researchers, and healthcare professionals
INTO-HLH: Hemophagocytic Lymphohistiocytosis Disease Registry
Population Served:
Patients, family members, and caregivers affected by Hemophagocytic Lymphohistiocytosis and health professionals